In local meet-up groups, members can offer support and show understanding through shared experiences. Meet-up groups can play an important role in coping and overcoming problems related to living with postural orthostatic tachycardia syndrome POTS. Meet-up groups offer perspectives from those who may have similar experiences and let those in the group know that they are not alone. These groups can allow people with POTS to join together as a community to seek strength, coping strategies, and empowerment.
These meet-up groups are not therapy and should not replace therapy. Peers cannot, and do not, assume the role of a physician or therapist. Please always consult a trained physical or mental health professional before making any decision regarding treatment of yourself or others. It is appropriate for group members to privately recommend therapy when it might be beneficial to an individual member.
Helpful tips for finding a good counselor are available on our counseling page. In local meet-up groups, members can offer support and show understanding and empathy because of shared experiences.
Each person should be able to express themselves if they wish and be accepted by the group. Support sessions also provide an ideal setting for problem solving while providing a much needed social outlet for many with POTS. Participants should leave feeling that they have had a pleasant meeting with friends. Each group can set its own format. A topic of discussion could be designated prior to the meeting, speakers could be invited, or your group could choose a more open format in which people can share what has happened since the last meeting.
Informal socializing is an important part of these meet-up groups. Having refreshments can facilitate time for group members to meet, catch up, continue informal discussion of the chosen topic, or seek advice from other members of the group. Group facilitators are volunteers who are seeking to build a POTS meet-up group within their community. They are not trained professionals.
